Welcome

Join us for TMS MastCellCon, happening in Indianapolis, IN, on July 13-15, 2024. This will be an amazing two days of educational sessions, inspiring discussions, and most exciting of all, time spent together as a community.  

This will be a hybrid event with presentations available both in person and virtually. The event is designed for patients, caregivers, and any other stakeholder with an interest in mast cell diseases. This includes researchers, physicians, and our fellow patient advocacy organizations.

This year we are thrilled to be able to make the recorded content from the conference available on the event app.

If you are joining us in Indianapolis, TMS has secured a discounted room rate for our conference attendees of $209/night.  You must use our dedicated link to secure these room rates:  TMS Conference Hotel Reservation link.

Whyshould I attend? top reasons

Why should you attend our TMS MastCellCon?



Networking and Peer Support:
Whether you are joining us in person (our first time together in person since 2019) or virtually, there will be lots of opportunities to share support and fellowship with one another. We will have in person and virtual support group meetings and round table discussions. Our Conference website and App will allow you to schedule networking meetings with conference attendees over video or in person.



Topics:
Our agenda is still getting some final adjustments; however, it is shaping up to be an incredibly informative conference. Presentations from the world's leading experts in mast cell diseases and related conditions will cover topics such as:

  • Anaphylaxis;
  • cutaneous mastocytosis;
  • hereditary alpha tryptasemia;
  • mast cell activation syndrome;
  • systemic mastocytosis (both non-advanced, and advanced);
  • managing daily life;
  • medication and treatment options;
  • navigating insurance;
  • nutrition;
  • student and workplace accommodations;
  • and more!
why attend

Fun and Freebies
We have some fun activities planned both in the app and in person. Sunday night we will have our Gala and Silent Auction. The app includes a leader board and scavenger hunt. We are also working on a few surprise activities.
Additionally, we are working with vendors of products that are important to our community to attempt to stuff your registration bags with samples, coupons, and other goodies!

Speakers

Marla Barkoff, MD

Endocrinologist & Founder, Integrative Endocrinology

Marla Barkoff, MD

TMS Medical Advisory Board

Dr. Marla Barkoff is a board-certified Endocrinologist with over a decade of experience caring for patients with thyroid disease. Her unique approach combines evidence-based medicine with a focus on quality of life as an important factor in thyroid regulation. She is dedicated to helping people understand and achieve thyroid balance, especially in the areas of autoimmunity and fertility. Dr. Barkoff began recognizing patterns of symptoms in her patients with thyroid disease who continued to feel unwell even after their thyroid was balanced. In a subset of these patients, she found elevated markers of mast cell activation and became dedicated to learning about and treating patients with Mast Cell Disease.

Presenting in Person

Thomas B Casale, MD

Professor of Medicine

Thomas B Casale, MD

University of South Florida Division of Allergy and Immunology

Dr Casale is Professor of Medicine and Pediatrics and Chief of Clinical and Translational Research at University of South Florida Division of Allergy and Immunology in Tampa. He is a Past President of the American Academy of Allergy Asthma and Immunology and was Executive Vice President for 10 years. He has served on the board of directors for the American Thoracic Society, The World Allergy Organization, and the American Board of Allergy and Immunology where he was also chair. Dr. Casale’s research interests include studying asthma, COPD and allergic diseases. He has published over 525 scientific papers, reviews, and chapters on these topics with more than 34,000 citations. He was recognized as one of the world’s top 2% most influential scientists.

Presenting Virtually

Mariana Castells, MD, PhD

Professor of Medicine, Director of Drug Hypersensitivity and Desensitization Center, Director of Mastocytosis Center

Mariana Castells, MD, PhD

Brigham & Women's Hospital, Harvard Medical School

Dr. Mariana Castells, M.D, Ph.D, is a clinician, researcher, and educator at Brigham and Women’s Hospital and Dana Farber Cancer Institute, USA. As the Director of the Drug Hypersensitivity and Desensitization Center and the Mastocytosis Center, she has developed desensitization protocols now standard worldwide, significantly impacting patient care in cancer and chronic inflammatory diseases. Her pioneering research focuses on drug anaphylaxis, hypersensitivity, and mast cell inhibitory mechanisms, crucial for desensitization and management of related symptoms. Dr. Castells has published over 60 publications in these areas and actively participates in pivotal clinical trials. She has held leadership roles including the Allergy and Immunology Training Program Director for 20 years, and positions on the Boards of AAAAI, ABAI, and CIA, and directs the International Drug Desensitization Meeting in Barcelona.

Presenting in Person

Ariella Cohen Coleman

Healthcare Attorney, Founder of The Wellness Esquire

Ariella Cohen Coleman

Brigham & Women's Hospital, Harvard Medical School

Ariella Cohen Coleman is a healthcare and life sciences attorney. She is the founder of The Wellness Esquire, shifting the legal industry to recognize and value the connection between wellbeing and success. Ariella is also the founder of I AM THE BOTTOM LINE., educating patients and caregivers on the ins-and-outs of the health insurance industry so that they are empowered to fight back and get the care they deserve. Ariella derives tremendous joy and fulfillment from impacting people all around the world by sharing on EDSetc.com and across media channels her health journey and the knowledge, practices, and resources that allow her to thrive while living with a complex constellation of chronic health challenges. Ariella lives in Santa Barbara, California with her magnificent husband, David, where they take full advantage of easy access to the beach and mountains to recharge and rejuvenate

Presenting in Person

Tracy I. George, M.D.

Chief Scientific Officer and President, Innovation Business Unit

Tracy I. George, M.D.

ARUP Laboratories; Professor of Pathology, Spencer Fox Eccles School of Medicine at the University of Utah

Dr. Tracy George is an academic physician and scientist at ARUP Laboratories, the largest nonprofit clinical reference laboratory in the U.S. ARUP Laboratories is an enterprise of the University of Utah School of Medicine where Dr. George also serves as a professor in the department of pathology. She completed her medical degree and pathology residency at the University of California San Francisco with hematopathology and surgical pathology fellowships at Stanford University. She is an expert in the pathology of systemic mastocytosis and has authored more than 200 publications. Dr. George is a cofounder of the American Initiative in Mast Cell Diseases (AIM) and currently serves as Secretary/ Treasurer of AIM.

Presenting in Person

Dr. Sarah Glover

Thorpe Ray MD Professor of Medicine and Chief of Gastroenterology & Hepatology

Dr. Sarah Glover

Tulane University School of Medicine, New Orleans, LA

Dr Sarah Glover is the Chief of Gastroenterology and Hepatology at Tulane University School of Medicine in New Orleans, Louisiana. Dr. Glover grew up in the Pacific Northwest. She completed a Bachelors of Arts in chemistry at Seattle Pacific University and attended medical school in Chicago, Illinois at Midwestern University, Chicago College of Osteopathic Medicine. She then completed her internal medicine residency and gastroenterology fellowship at the University of Illinois at Chicago. She served as an Assistant Professor at the University of Illinois at Chicago from 2004 until 2010. From 2011 to 2018, she served as faculty at the University of Florida in Gainesville, Florida and directed the Inflammatory Bowel and Celiac Disease Program in the Division of Gastroenterology, Hepatology and Nutrition. At University of Misssissippi Medical Center in Jackson, her clinical practice focused on Crohn's Disease, ulcerative colitis, eosinophilic and mast cell disorders that impact the GI tract including hereditary alpha tryptasemia. Dr. Glover has current NIH funding and is very active in industry sponsored clinical trials. Her laboratory focuses on inmate immune mechanisms of gut inflammation.

Presenting Virtually

Matthew J. Hamilton M.D.

Lead Gastroenterologist, Chief of Gastroenterology, Assistant Professor of Medicine

Matthew J. Hamilton M.D.

Mastocytosis Center, Brigham and Women's Hospital; Brigham and Women's Faulkner Hospital; Harvard Medical School

Matthew Hamilton, M.D., is an Assistant Professor of Medicine at Harvard Medical School and the lead gastroenterologist at the Mastocytosis Center at Brigham and Women’s Hospital. Dr. Hamilton is nationally recognized in the clinical area of gastrointestinal manifestations of mast cell disorders. Since his original mast cell activation description publication in 2011, he has been an invited speaker at >20 national conferences and institutions around the country and authored 30 reviews, chapters, editorials, and original research publications specifically in this area of expertise. Dr. Hamilton currently serves on the medical advisory board for TMS.

Presenting in Person

Tina Johnson, BSN, RN, OCN

Senior Clinical Nurse Educator, Oncology & Acute Care

Tina Johnson, BSN, RN, OCN

TerSera Therapeutics

Tina Johnson is a registered nurse with a background in oncology and outpatient infusion. As a nurse educator with TerSera Therapeutics, she works directly with patients and clinicians to provide disease state education as well as medication education and support. She is passionate about empowering patients with the knowledge and skills they need to maximize their quality of life and navigate their healthcare journey. As a nurse in the pharmaceutical industry, she is an advocate for the patient experience and our role in reducing disease burden. In her free time, she enjoys trail running, hiking, and hanging out with her dog.

Presenting in Person

Patricia Lugar, MD MS

Associate Professor of Medicine

Patricia Lugar, MD MS

Duke Asthma, Allergy and Airway Center

Presenting in Person

Jonathan Lyons, MD

Professor of Medicine, in Residence

Jonathan Lyons, MD

Division of Allergy & Immunology; University of California, San Diego

Dr. Lyons attended Pomona College and Jesus College, Cambridge, UK, prior to earning his M.D. from USC. He subsequently completed residency training in Internal Medicine at UCSD where he was selected to be Chief Medical Resident. His clinical fellowship was completed in Allergy and Immunology at NIAID, where he subsequently joined the Laboratory of Allergic Diseases Assistant Clinical Investigator and was subsequently recruited to be a tenure-track investigator. During his decade of tenure at NIAID Dr. Lyons participated in the discovery and characterization of several primary atopic disorders - inborn errors of immunity (IEIs) presenting with severe allergic inflammation - including PGM3 deficiency, ERBIN deficiency, STAT6 gain-of-function, and Hereditary alpha-tryptasemia. In 2024 he was recruited back to UCSD where he is now Professor of Medicine within the Division of Allergy & Immunology. Using immunogenetic approaches, the Lyons lab seeks to identify mechanisms critical to allergic inflammation and hypersensitivity that can be targeted to conduct first in human clinical trials. Dr. Lyons has received several awards for his work, including the 2015 AAAAI Foundation/The Mastocytosis Society Research Award, NIAID Merit Awards in 2016, 2017, and 2020, the Lasker Scholarship in 2018, the Young Physician-Scientist Award from the ASCI in 2020, and the Innovation in Research Award from The Mast Cell Disease Society in 2021.

Presenting Virtually

Anne L. Maitland, MD, PhD

Assistant Professor, Department of Medicine - Allergy & Clinical Immunology; Director, Allergy & Immunology

Anne L. Maitland, MD, PhD

Icahn School of Medicine at Mount Sinai; Metrodora Institute; Consultant for Clinical

Anne L. Maitland, MD, PhD is an Assistant Professor in the Department of Medicine, Allergy and Clinical Immunology at the Icahn School of Medicine at Mount Sinai, in New York, Director, Allergy/Immunology Services at Metrodora Institute in Salt Lake City, UT and Consultant, Clinical Paradigms, New York and Maryland. Dr. Maitland serves on committees, addressing mast cell activation disease (MCAD), Health Care Disparities and Integrative Medicine of the American Academy of Allergy, Asthma and Immunology. She also serves on the scientific faculty for the Mast Cell Disease Society, the Ehlers-Danlos International Consortium and the Chiari-Syringomyelia Foundation. She is a Fellow of the American College of Allergy, Asthma and Immunology, a member of the American Academy of Allergy, Asthma and Immunology, and a Vice Chair of the Allergy/Immunology Work Group of the National Medical Association.Her clinical and research efforts focus on increasing access to Allergy/Immunology Specialty care as well as the diagnosis and management of immune mediated disorders, including MCAD. Recent publications highlight immune dysfunction in patients with Ehlers Danlos Syndrome and dysautonomia, including chapters in the book, Transforming Ehlers Danlos Syndrome, and the recent publication from National Academy of Sciences, Engineering and Medicine, entitled Selected Heritable Disorders of Tissue and Disability.

Presenting in Person

Lora Marden

Vice President, Patient Advocacy, Engagement & Innovation

Lora Marden

Cogent Biosciences

Lora is the Vice President of Patient Advocacy, Engagement & Innovation at Cogent Biosciences. Cogent is a biotechnology company focused on advancing novel therapies for genetically defined diseases, including Systemic Mastocytosis. In this role, she and her team act as liaisons between the company and patient organizations and their communities with the goal of collaborating and sharing insights to help move patient-focused drug development forward to deliver meaningful therapies that improve people’s health. Lora has spent 18 years working in the biotech industry and began her career as a Social Worker. She is passionate about ensuring the patient perspective and experience is valued throughout the drug development lifecycle.

Presenting in Person

Bonnie Nasar, RDN

Registered Dietician & Owner, Nasar Nutrition

Bonnie Nasar, RDN

Bonnie Nasar RDN is a registered dietitian nutritionist and owner of Nasar Nutrition, a virtual private practice specializing in Mast Cell Disease, Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Autonomic Dysfunction, Gastroparesis, and Fibromyalgia. Bonnie has lectured around the world on these conditions. She is the author of The 30-Minute Fibromyalgia Cookbook, a Mediterranean-style collection of recipes for people with chronic pain. She is a volunteer dietitian for The Mast Cell Disease Society and the Ehlers Danlos Society International Consortium Committee Diet and Nutrition Working Group.

Presenting Virtually

Jennifer Nicoloro-SantaBarbara, PhD

Investigator, Department of Psychiatry, Brigham and Women’s Hospital

Jennifer Nicoloro-SantaBarbara, PhD

Instructor of Psychiatry, Harvard Medical School

Dr. Nicoloro-SantaBarbara earned her PhD in Social and Health Psychology from Stony Brook University. She then completed a NIMH T32 postdoctoral fellowship in Biobehavioral Issues in Mental and Physical Health at UCLA. Currently, she holds the position of Investigator in the Department of Psychiatry and is an affiliated member of the Mastocytosis Center at Brigham and Women's Hospital. Additionally, she serves as an Instructor of Psychiatry at Harvard Medical School. Her research focuses on understanding the increased burden and heterogeneity in presentation and pathophysiology of depression in inflammatory diseases such as mastocytosis, as well as exploring the psychological impact of chronic illness. Notably, she is a past recipient of Harvard Medical School’s Kaplen Fellowship in Depression and serves on The Mast Cell Disease Society’s Board of Directors.

Presenting Virtually

Fatima Scipione

Vice President of Global Patient Affairs

Fatima Scipione

Blueprint Medicines

Dr. Marcus Shaker

Professor of Pediatrics and Medicine

Dr. Marcus Shaker

Geisel School of Medicine at Dartmouth

Dr. Shaker is a Professor of Pediatrics and of Medicine at the Dartmouth Geisel School of Medicine, and a member of the AAAAI Board of Directors and AAAAI/ACAAI Joint Task Force on Practice Parameters. Dr. Shaker is also an Associate Editor of Annals of Allergy, Asthma, and Immunology and an Editorial Board member of The Journal of Allergy and Clinical Immunology In Practice and the Journal of Food Allergy. Dr. Shaker’s research interests center around optimizing value-based care in Allergy and Clinical Immunology. He has published over 150 articles and guidelines.

Presenting Virtually

Shonna Snyder, Ph.D.

Research Scientist

Shonna Snyder, Ph.D.

The Mast Cell Disease Society

Shonna earned her Ph.D. in Health and Kinesiology from Purdue University. Her bachelor’s and master’s degrees are also in the health education, health promotion, and exercise science fields. She is a co-author of the text Core Teaching Practices for Health Education along with many other peer-reviewed publications. Diagnosed with a rare cancer, bladder paraganglioma, in 2019 after many years of symptoms often dismissed as stress, fatigue, panic attacks, or POTS, she pushed for further testing which eventually led to surgery at the NIH in November 2019. Given her rare disease experience, she is excited to be giving back to the rare disease community at TMS

Presenting In Person

Sarah Cohen Solomon, MD, FAAP

ABP Board Certified Pediatrician

Sarah Cohen Solomon, MD, FAAP

PRISM Spine and Joint

Sarah Cohen Solomon, MD, FAAP is the ABP Board Certified Pediatrician at PRISM Spine and Joint, where she specializes in caring for patients with hypermobile Ehlers Danlos Syndrome and related conditions, in particular Mast Cell Activation Syndrome. This interest stems from her own lifelong experience with these conditions. After graduating from Sidney Kimmel Medical College of Thomas Jefferson University, Dr. Cohen Solomon remained at the affiliated Nemours Hospital for Children, where she was awarded the Pediatric Academic Excellence Award for Outstanding Research, Education, and/or Advocacy in General Pediatrics for her work expanding the Advocacy curriculum for their residency program. Dr. Cohen Solomon is passionate about breaking down barriers to healthcare and education, and providing children with appropriate accommodations so they can thrive at school among their peers.

Presenting in Person

Dr. Celalettin Ustun

Director of Cell Therapy Section

Dr. Celalettin Ustun

Rush University, Chicago, IL

Dr. Celalettin Ustun: Born and educated in medicine and hematology in Turkey. Re-trained in the US between 2000-2005. I am interested in have been involved in clinical trials hematologic malignancies (e.g., leukemias) and mastocytosis.

Presenting in Person

Pankit Vachhani, MD

Associate Professor of Medicine

Pankit Vachhani, MD

University of Alabama at Birmingham

Dr. Pankit Vachhani is an Associate Professor of Medicine at the University of Alabama at Birmingham and Associate Scientist of Experimental Therapeutics. He graduated from Weill Cornell Medical College in Qatar in 2012 and went on to complete his internal medicine residency at Virginia Commonwealth University, followed by a fellowship in hematology/oncology at Roswell Park Comprehensive Cancer Center in Buffalo, NY. At UAB, he is involved in various clinical trials as a principal investigator. He leads the Leukemia/BMT working group and serves as the Medical Director of the Clinical Research Unit (CRU). His primary research interest is in hematological malignancies, particularly myeloproliferative neoplasms, systemic mastocytosis, and AML. Dr Vachhani has published articles in peer-reviewed journals such as Blood and Journal of Clinical Oncology.

Presenting in Person

AgendaAgenda details coming soon... However we can tell you that the festivities kick off at 2 pm on Saturday July 13th and will conclude at Noon on Monday July 15th.schedule

Oursponsors

We are so grateful to our Partners in Hope sponsors who support the work of TMS year-round and to our Conference exhibitors who are helping us to make this year’s conference the best on yet.

Titanium Sponsor

Gold Sponsor

Bronze Sponsor

Silver Sponsor

Copper Sponsor

FAQFrequently Asked questions inquire


We have negotiated with the hotel to provide the following safety accommodations for our group:

Cleaning:
  • Extra Towels at check-in, based on hotel availability.
  • No smelly cleaning products used, instead vinegar and water or Hydrogen Peroxide.
    Linens washed with an extra rinse, and without the use of dryer pads/sheets to remove detergents prior to arrival.
  • No carpet cleaning two weeks prior to the event
  • No air fresheners in rooms, meeting rooms, OR hallways, or lobby
  • All automatic scent machines for the lobby and public areas must be disconnected 24 hours before our arrival.
  • No open smelly soaps.

Meals:
  • A list of ingredients will be provided in the menu items once finalized.
  • Items labeled with Top 9 allergens.
In person registration includes some meals. Full details will be coming soon, and an ingredient list will be sent to each registrant 2 weeks before the event. Ingredient lists will also be available for each meal in the dining spaces and hotel staff will be available should you have any questions. You can also purchase food at the hotel's restaurant or one of the many restaurants near the hotel.
The temperature in Indianapolis in July is usually in the mid-80s with high humidity. The dress is summer casual for the conference. You may want to bring a cardigan or sweater because the meeting rooms can get a little chilly sometimes. We suggest cocktail party attire, the more purple the better for the Sunday Night Purple Tie Gala and Auction.
We're planning a busy weekend, but we have left Saturday evening open for attendees to explore the area. We are working on pulling together a list of activities that may be of interest.
Conference attendees will continue to have access to the event content and features on the app until December 31, 2024
Please reach out at tms@vfairs.com
Please feel free to contact us with any questions. info@tmsforacure.org